• Care for the dying: experiences and challenges: a study of quality of health service care during the last year of life of patients at St James's Hospital, Dublin from their relatives' perspective.

      Keegan, Orla; McGee, Hannah; Brady, Therese; St James's Hospital. Palliative Care Service.; Irish Hospice Foundation.; Royal College of Surgeons in Ireland. Department of Psychology. Health Services Resource Centre.; Royal College of Surgeons in Ireland. Department of Psychology. Health Services Resource Centre. (Royal College of Surgeons in Ireland. Department of Psychology. Health Services Resource Centre., 1999-02)
    • Evaluation of the children's palliative care programme (CPCP)

      Jordan, Joanne; Fullerton, Deirdre; GEN Research & Insights Health and Social Research (Children’s Palliative Care Programme (CPCP), 2016-09)
    • Evaluation of the programme to support palliative and hospice care in the Republic of Ireland: Final report

      Mc Carron, Mary; Higgins, Agnes; Larkin, Phil; Drennan, Jonathan; Mc Callion, Philip; Payne, Sheila; Hynes, Geralyn; May, Peter; Trinity College Dublin (TCD) (Trinity College Dublin (TCD), 2010-12)
    • Exploring healthcare assistants' role and experience in pain assessment and management for people with advanced dementia towards the end of life: a qualitative study.

      Jansen, Bannin De Witt; Brazil, Kevin; Passmore, Peter; Buchanan, Hilary; Maxwell, Doreen; McIlfatrick, Sonja J; Morgan, Sharon M; Watson, Max; Parsons, Carole; Our Lady's Hospice & Care Services (BioMed Central, 2017-01-19)
      Pain assessment and management are key aspects in the care of people with dementia approaching the end of life but become challenging when patient self-report is impaired or unavailable. Best practice recommends the use of observational pain assessments for these patients; however, difficulties have been documented with health professionals' use of these tools in the absence of additional collateral patient knowledge. No studies have explored the role, perspectives and experiences of healthcare assistants in pain assessment and management in dementia; this study provides insight into this important area.
    • Exploring the Interface of Oncology and Palliative Care in Ireland

      Coleman, K.; Brady, C.; O’Reilly, S.; O’ Brien, T. (Irish Medical Journal, 2019-07)
    • INSPIRE (INvestigating Social and PractIcal suppoRts at the End of life): Pilot randomised trial of a community social and practical support intervention for adults with life-limiting illness.

      McLoughlin, Kathleen; Rhatigan, Jim; McGilloway, Sinead; Kellehear, Allan; Lucey, Michael; Twomey, Feargal; Conroy, Marian; Herrera-Molina, Emillio; Kumar, Suresh; Furlong, Mairead; et al. (BMC palliative care, 2015-11-24)
      For most people, home is the preferred place of care and death. Despite the development of specialist palliative care and primary care models of community based service delivery, people who are dying, and their families/carers, can experience isolation, feel excluded from social circles and distanced from their communities. Loneliness and social isolation can have a detrimental impact on both health and quality of life. Internationally, models of social and practical support at the end of life are gaining momentum as a result of the Compassionate Communities movement. These models have not yet been subjected to rigorous evaluation. The aims of the study described in this protocol are: (1) to evaluate the feasibility, acceptability and potential effectiveness of The Good Neighbour Partnership (GNP), a new volunteer-led model of social and practical care/support for community dwelling adults in Ireland who are living with advanced life-limiting illness; and (2) to pilot the method for a Phase III Randomised Controlled Trial (RCT).
    • Interviews with Irish healthcare workers from different disciplines about palliative care for people with Parkinson’s disease: a definite role but uncertainty around terminology and timing

      Fox, Siobhan; Cashell, Alison; Kernohan, W. G; Lynch, Marie; McGlade, Ciara; O’Brien, Tony; O’Sullivan, Sean S; Timmons, Suzanne (2016-02-09)
      Abstract Background An integrated palliative care approach is recommended in all life-limiting diseases, including Parkinson’s disease (PD). However research shows that people with PD have unmet palliative care needs. The study aimed to explore multidisciplinary healthcare workers’ (HCWs) views on palliative care for people with PD, identifying perceived barriers and facilitators. Methods A qualitative design was used; data was analysed using Thematic Analysis. Semi-structured interviews were conducted with 30 HCWs, working either with people with PD or in a palliative care setting in Ireland. Results A number of perceived barriers were evident helping to account for the previously reported unmet palliative care needs in PD. A lack of education about PD and palliative care meant that HCWs were unsure of the appropriateness of referral, and patients and carers weren’t equipped with information to seek palliative care. A lack of communication between PD and palliative care specialists was seen to impede collaboration between the disciplines. Uncertainty about the timing of palliative care meant that it was often not introduced until a crisis point, despite the recognised need for early planning due to increased prevalence of dementia. Conclusions Most HCWs recognised a need for palliative care for people with PD; however several barriers to implementing a palliative care approach in this population need to be addressed. Implications for clinical practice and policy include the need for an integrated model of care, and education for all HCWs, patients, carers, and the public on both the nature of advanced PD, and the potential of palliative care in support of patients and their family members.
    • Paediatric palliative care: development and pilot study of a 'directory' of life-limiting conditions

      Hain, Richard; Devins, Mary; Hastings, Richard; Noyes, Jayne (2013-12-11)
      Abstract Background Children’s palliative care services are developing. Rational service development requires sound epidemiological data that are difficult to obtain owing to ambiguity in the definitions both of the population who needs palliative care and of palliative care itself. Existing definitions are of trajectory archetypes. The aim of this study was to develop and pilot a directory of the commonest specific diagnoses that map on to those archetypes. Methods The diagnoses of patients under the care of five children hospices and a tertiary specialist palliative medicine service in the UK were recorded. Duplicates and diagnoses that were not life-limiting conditions according to the ACT/RCPCH criteria or were not primary were removed. The resulting Directory of life-limiting conditions was piloted by analysing Death Certificate data of children in Wales between 2002 and 2007. Results 1590 diagnoses from children’s hospices and 105 from specialist palliative medicine were combined. After removals there were 376 diagnostic label. All ICD10 chapter headings were represented by at least one condition. The pilot study showed that 569 (54%) deaths in Wales were caused by LLC. Only four LLC resulted in ten or more deaths. Among deaths from LLC, the ten commonest diagnoses accounted for 32%, while the 136 diagnoses that caused one or two deaths accounted for 25%. The majority occurred from a small number of life-limiting conditions. Conclusion The Directory is a practical tool for identifying most life-limiting conditions using ICD10 codes that facilitates extraction and analysis of data from existing sources in respect of life-limiting conditions in children such as death certificate data, offering the potential for rapid and precise studies in paediatric palliative care.
    • Palliative care in People with Parkinson’s disease

      The Irish Palliative Care in Parkinson’s Disease Group. (The Irish Palliative Care in Parkinson’s Disease Group., 2016)
    • Protocol for a thematic synthesis to identify key themes and messages from a palliative care research network.

      Nicholson, Emma; Murphy, Tara; Larkin, Philip; Normand, Charles; Guerin, Suzanne; Our Lady's Hospice & Care Services (BioMed Central, 2016-10-21)
      Research networks that facilitate collaborative research are increasing both regionally and globally and such collaborations contribute greatly to knowledge transfer particularly in health research. The Palliative Care Research Network is an Irish-based network that seeks to create opportunities and engender a collaborative environment to encourage innovative research that is relevant for policy and practice. The current review outlines a methodology to identify cross-cutting messages to identify how dissemination outputs can be optimized to ensure that key messages from this research reaches all knowledge users.
    • Review: Neonatal palliative care in action: moving beyond the rhetoric and influencing policy

      Nicholl, Honor; Nursing and Midwifery Department, University of Dublin, Trinity College (Sage, 2013)
    • Technology used at home for children with complex needs

      Nicholl, Honor; School of Nursing and Midwifery, Trinity College Dublin (University of Dublin, Trinity College., 2012-01)